top of page
  • Writer's pictureeumgasm

Creating a Community: EuMGA's Role in Connecting Associations

Updated: Apr 1

Creating a Community: EuMGA's Role in Connecting Associations In today's interconnected world, the power of community cannot be underestimated. For individuals affected by myasthenia gravis, a rare autoimmune disorder, finding support and resources can be a challenge. That's where EuMGA, the European Myasthenia Gravis Association, comes in. As a non-profit organization, EuMGA serves as a bridge for global collaboration and connects European myasthenia gravis national associations, creating a strong and supportive community. The primary goal of EuMGA is to provide information and support to individuals affected by myasthenia gravis. Through our members , we offer valuable resources such as educational materials and tips for managing the condition. By connecting MG patient associations EuMGA ensures that individuals and their families have access to the most up-to-date and reliable information available. Another important aspect of EuMGA's mission is to raise awareness about myasthenia gravis. By educating the public and healthcare professionals about the condition, we aim to reduce the lack of knowledge surrounding it. This increased awareness can lead to earlier diagnosis and better treatment outcomes for individuals with myasthenia gravis. One of EuMGA's unique points is its ability to connect patients across Europe and globally. This sense of community can be incredibly empowering. EuMGA also plays a crucial role in fostering collaboration between associations. By bringing together national associations from different European countries, they create a platform for sharing best practices, exchanging ideas, and collaborating on projects. This collaboration not only benefits the associations themselves but also improves the overall support and resources available to individuals with myasthenia gravis. Furthermore, EuMGA organizes events that bring patients and associations together. By facilitating these interactions, EuMGA strengthens the sense of community and support among individuals affected by myasthenia gravis. At the heart of EuMGA's work is a focus on patient-led projects. We have established a dedicated committee that ensures patients are at the center of all their projects and initiatives. By involving patients in decision-making processes, EuMGA ensures that their needs and perspectives are heard and addressed. Founded in 2009, EuMGA has undergone significant transformation and is now registered as an Association Internationale Sans But Lucratif (AISBL) according to Belgian Law. This official recognition further solidifies their commitment to serving individuals affected by myasthenia gravis and connecting associations across Europe. In conclusion, EuMGA plays a vital role in creating a community for individuals affected by myasthenia gravis. Through their website, events, and collaborations, they provide information, support, and a sense of belonging to individuals and associations. By connecting patients across Europe and globally, EuMGA ensures that no one has to face myasthenia gravis alone.


36 views

Recent Posts

See All

Comments


bottom of page